The therapist felt her legs and noticed that her left side is very tight all the way up her back down to her foot. She doesn't know if this is tight because of her scooting or if she scoots because it is tight. She said her left leg is shorter than her right leg - which may be due to tightness, or maybe because she doesn't put weight on it (because bones grow when they are used and have pressure put on them). The therapist is not as worried about the leg being shorter yet, she feels this may correct as she gets the tightness out. The look on the therapists face scared me when she asked me to lay her down flat so she could watch her sit up and I told her she cannot sit up and when she wanted to see her roll over and I told her she rarely ever rolls over and that it takes a while if she ever does it. I knew that wasn't good, but even not knowing this therapist I knew that look wasn't good.
Another thing the therapist didn't like was how much Ryan sleeps. She goes to bed around 8:00 p.m. and sleeps until 7:30 a.m. through the week (I wake her) and 9:30 a.m. on the weekends. She then will take a 3-5 hour nap, depending. She said that is too much sleep and laying around - I just assumed if she was sleepy, to let her sleep (the whole never wake a sleeping baby thing). Well, she said 2-3 hour nap max and to get her up and going after that. She said part of the reason she thinks she sleeps so much is because she cannot sit up and move around or play in bed so she just goes back to sleep.
She plans to "hit her hard" with lots of therapy at first to try to get her caught up and get started on Myofascial Release to help get her left side loosened up. I have a feeling Ryan is not going to like this very much, but as her mom I have to push her and get it done. She will thank me later :)
Another thing the therapist was concerned with was her gagging. When Ryan was born she had what they thought at the time was a seizure - but it turns out she had gagging episodes that resembled seizures. This happened again at her daycare (she stopped breathing for over a minute this time). After that, it didn't happen to that extent again and her stomach matured and she only gags now if I put to much food on her spoon when I help feed her. The therapist said this could be a sensory problem that required occupational therapy, but said we could wait on that if we wanted. I chose to wait, I don't feel this is a big problem. She eats all kinds of textures but just gags easily if she gets too much in her mouth, as anyone would. Hopefully nothing ever becomes of this.
For now, we are waiting on the therapist to complete her paperwork and send it to her doctor and get her test results back. The therapist warned me that her scores will be very low - and I am glad she did. Ryan is perfect and will walk, this is just a little bump in the road. But, no one wants to read things telling them their child is slow or delayed - so I am glad to know this is a "standardized test" and not to hold too much weight to it.
So, if you can, please keep Ryan and all of us in your prayers as we start this little journey. I am not asking for sympathy or help (we are blessed to be able to see a therapist and get help, others are not so lucky and do not have such good odds) - just send some happy thoughts our way as we help our little miracle get on the right track to not just walking, but running :)