|Little weak on the left side|
I went to her check-up with her pediatrician and he said he really didn't think there was anything wrong with her at all. He said he thinks she just needs a little help with her leg and that she would for sure walk and he was unsure what the therapist was seeing to come to her conclusions. He said he would go ahead and do the referral to Arkansas Children's Hospital for genetic testing to put everyone's minds at ease but he really doesn't feel it is necessary. In the meantime we got the initial screening back on Ryan where they had her skills at a 2 month level when she was 16 months old - I did not like this at all. She was obviously WAY more advanced than a 2 year old. She could do almost everything except walk and had trouble getting up sometimes because of her weakness on her left side - which is all from her scooting habit.
We went to the genetic testing and they said they had no idea why she was even there. He said she looked totally normal other than some leg tightening that should be resolved with therapy. He said he couldn't believe she was even referred there since she was talking so well and meeting all other milestones. He said if she seemed delayed in 4 months to come back but if not then he saw no reason to see her again. That was a huge weight lifted, but it also should have never been a worry according to him and her pediatrician.
We started therapy 3 times a week and it was rough. She was seen at daycare 2 times and I would take her one day a week so I could observe her. Ryan would cry the entire sessions - sometimes until she would vomit. She HATED it - she didn't want any of them touching her. Just like Noah, this was a time in her development where she wanted only Momma all the time - no one else. She was fine with Daddy and her sitter too if I was not around, but she just really wanted me then. Everyone kept telling me she would get used to it and stop crying and after 4 months she was still just as bad. She would start crying as soon as we would walk in the door to the therapy office and not quit until we left. She was doing a little better at daycare with the Physical Therapy Assistant Sara that she saw there - she was crying a little less but would still immediately start crying when she heard Sara knock on the door. As a mother, this was VERY hard.
|Momma working with Ryan on her therapy ball at home :)|
In March Ryan was walking well and I wanted to start the transition of getting her out of therapy. The therapist said she wasn't only there to walk and that she was still very delayed for her age. I looked up the age appropriate guidelines that my pediatrician told me to use and she was fine with all of them and even doing some things advanced for her age. I asked to see the goals that she sent to her pediatrician (which started out as 8 goals) that was now 25 goals and she was doing all but 4 of them and the others were on the list for a 24 month old and she was 18 months old. The therapist said she needs to see videos of them or she was not going to mark them off. So, I videoed her running, bending to pick things up, kicking a ball, etc. She said she would reevaluate her at the end of that month and let me know what she thought. The end of that month she said her leg was still tight and needed further therapy. When she was doing her therapy on my leg to show me how to do it to Ryan at home she said my legs were also tight. I don't notice anything with them and walk fine so I don't think this is an issue.
|She is a great climber :)|
|She loves to jump at the jump houses :)|
I just keep getting this gut feeling to take her out of therapy. I am not sure what it is, but I learned long ago not to ignore my mothers intuition. I tried to not let my conflicts with the therapist play into my decisions in any way. I did consult with her pediatrician and some other therapists first and they all said there was no harm in taking her out and watching her for delays. So that is where we are now. The experience was not all bad though. Ryan can walk and run and jump and do everything any other kid can do and I fully believe this is because she was worked with weekly. The Physical Therapy Assistant Sara that she saw the most was amazing. She really worked hard to win Ryan over and develop a relationship with her. She is part of Ryans history and we are very thankful for her.
|Sara and Ryan on her last day :)|
"My flesh may fail, my God you never will". Thank you God for healing our Ryan.